THORNHILL, Ont. – Gwenevere Repetski turns three next month and she is finally able to crawl, a milestone her parents thought they would never see.
She was just an infant when she was diagnosed with epilepsy, a debilitating neurological disorder that has left her developmentally delayed.
“She was kind of like a bag of Jell-O,” says her mother, Reagan Repetski.
When she was two years old, she could hardly roll over when she was placed on her back, adds her father, Alex.
Sitting in the living room of their Thornhill, Ont., home, the Repetskis recall their stressful and emotional journey in search of a treatment for Gwen.
The first drug she was prescribed — Sabril — only managed to control her seizures for about a month. The next one was a steroid called ACTH, which her parents say caused her to gain half her body weight in three weeks.